Ellison Grace

Ellison Grace
"The Lord your God is with you, he is mighty to save. He will take great delight in you, he will quiet you with his love, he will rejoice over you with singing."-Zephaniah 3:17

Fireworks and Smiles

Fireworks and Smiles
Uncle Markie and Mommy keep me warm, sleepy, for the 4th of July

Good Food!

Good Food!
I love my food! It's the best...the spoon isn't bad either.

Super Ellison

Super Ellison
At my next trip to the doctors, June 15th, I will be getting a cardio cathider so they can shoot a dye around my heart to see all the veins, arteries, and chambers. Armor on little warrior princess!

The Fantastic 4

The Fantastic 4
As I get bigger, the time for my first major surgery get near, but today we get to play and be silly...and I LOVE that!

My Ellison

My Ellison
My Eli loves me so much!

Silly Gooses

Silly Gooses
My brothers and sister love to be silly. I love them so much!

She Sleeps

She Sleeps
This is the day of Ellison's Pulminary Aterial (PA) Band surgery. Although you cannot tell in this picture Mommy, Daddy, and Elly waited over 4 1/2 hours longer than expected to start this proceedure. Little Angel girl was amazing and slept most of the time. Even though it had been 10 hrs since she ate last.

Before surgery

Before surgery
The night before surgery. The scars that you see are from my Hirschsprungs surgery I had when I was 7days old.

After Surgery

After Surgery
Uncle JT watches over me as I come out of surgery. I was still on the ventilator and in and out unconsious. I had a cathider around my heart to make sure fluid didn't go around my heart. Lots of other tubes, but God was taking very good care of me.

Happy New Years!

Happy New Years!
Still recovering from my Hirschsprung surgery. The doctors had to take half of my colon. I'm resting in a "Hood" with my feeding tube and ventilator to get more strength.

"Hi Mommy!"

"Hi Mommy!"
Ellison and I reach for each other for the first time

Ellie's Guardian Daddy

Ellie's Guardian Daddy
Daddy watches over me as I sunbathe under the billy lights

Peek-a-Boo

Peek-a-Boo
Aarrrr Mate! I see you trying to prick my heal one more time

Daddy, Mommy and Little Ellison

Daddy, Mommy and Little Ellison
Daddy, Mommy and I take our first family picture together

I will hold your hand little Ellie girl

I will hold your hand little Ellie girl
"I'm not just your big brother, I'm your Superhero and have come to take you home." -Kelton

A sisters love

A sisters love
"...and I will share the color pink with you an teach you all about the Princesses. Did you know Ellie, that you are God's little Princess? You are, you are!" -Hallie

Our first skin to skin snuggle

Our first skin to skin snuggle
Our long awaited first snuggle. I love you!!!

My cousin Evan and I meet for the first time

My cousin Evan and I meet for the first time
Our future so bright we better wear shades

Daddy's Kisses

Daddy's Kisses
Daddy gives me kisses while I'm on the ventilator, after my colon and intestinal surgery.

Tuesday, June 2, 2009

On June 15th Ellison will be going to Children's for a cardio cath. This is to determine which of the three "heart option" proceedures will ultimately bring Ellison her best health. Please pray for us, as we come to some very difficult decisions for our Warrior Princess. It is more than obvious to us that the Lord clearly has a plan for this miricle.

Thursday, January 1, 2009

Ellison's Journey begins

Hello Sweet World,

I am Ellison Grace! I was born 12.18.08 at 11:28pm, 6lbs. 2oz., 19 1/2 in long. Although labor was long and the doctors were not sure what to expect with my heart being broken, my Mommy was the first person to hold me as I came out...we were worried we wouldn't get to see each other. Much of my family was there as I entered into the world alert and aware of my surroundings. Daddy followed me as I made my transition to the NICU. I have conquered many things since my first day of life. IVs, jaundice, echo's, disdained belly, not eating, throwing up (yuck ups), the diagnosis of Downsyndrom, biopsies of my intestines, Hirschsprung's disease (which lead to my first surgery), ventilator, "the hood", xrays, BUT most of all not going home with my family. Praise the Lord that my echo's showed that my right ventricle is bigger than the doctors thought and they think they can use my whole heart! That means we must come up with a new plan for what my heart surgeries will be. God and I knew all along that my heart was better than what they saw...silly doctors, God is so good! I'm still struggling to eat well without throwing up, but my oxygen and heart rate are awesome and strong. We are not sure when I will sent home, but my family comes to see me every day...Even my brothers and sister...sometimes. Please continue to pray as the Lord reveals His plan to the doctors and my family. Also if you ask my Mommy and Daddy they would love to show me off to you all.





With Love,

Ellie

Thursday, November 27, 2008

Donations

Please send your donations for Baby Thibodeau's Benefit to:
Mary Lynda Frommer
4068 Guadeloupe
Boulder, CO 80301
Please mark memo: Baby Thibodeau's Heart

Happy Thanksgiving to All!

What a wonderful Thanksgiving! We have so many things to be thankful for. Our families and extended families, our friends...extended family. We appreciate and love all of you so much. The Lord has blessed us beyond measure. We hope that each one of you have basked in the love and joy of today. Many blessings and love to you!

Monday, November 24, 2008

Updates

Today we visited with our favorite doctor, Dr. Amy, for our regular check-up. Little Love Bugs heart rate was 153 and I was measuring 35 wks, which is right on target. She is movin' and grovn', enjoying her "room" for the time being. We cannot wait to meet her!
"The mind determines what's possible. The heart surpasses it"
~Pilar Coolinta

Flower Lilly

Flower Lilly
"I praise you for I am fearfully and wonderfully made..." Psalm 139:14a